My name is Alexandru Victor Constantin, I am born on September 9th 1974 and I live in Romania, Iasi city.
I have a giant pelvic chondrosarcoma, an expansive tumor having the sizes 15,5 x 9,5 x 23 cm, developed from the left thigh-bone, with extension in the hemi-pelvis to the level of section which passes through L5, which marks the bladder and displaces it to the right lateral, invades the internal iliac vessels on the left side, displaces anteriorly and laterally the left vascular femoral package, invades the left internal obturator muscle and the left gluteus minimus, the left iliac bone.
I have such a tumor, of small size, on my left thigh-bone, too. On my right thigh-bone I have an exostosis with stationary aspect.
I mention that I am 160 cm tall and I weigh 54 kg.
I also had a giant chondrosarcoma in my spine, which covered the vertebrae L4 – L5, and which was entirely removed through a surgery in December 2003 and it hasn’t appeared since.
The chondrosarcomas developed on the background of some hereditary multiple exostoses.
Regarding the evolution of these tumors, I mention that beginning with 1999 the chondrosarcoma in my spine started to grow. Initially, the doctors asserted that it was a hereditary benign exostosis and that it was not necessary to remove it by surgery because of the risks drawn in by the surgery.
During the following years the tumor on the spine grew dramatically and in 2003 they decided its removal through surgery.
In view of performing the surgery, they had to do a CT (computerized tomography) on me and that was when they discovered the existence of the giant chondrosarcoma in my pelvis. As I had specified before, the giant chondrosarcoma in my spine was entirely removed in December 2003. The results of the pathological anatomic tests showed that the tumor was a chondrosarcoma of 1st degree.
In July 2004 I had a new surgery for the giant pelvic chondrosarcoma, but all they could do was a partial excision of the tumor. From the pathological anatomic tests it resulted that the tumor was also a chondrosarcoma of 1st degree.
Between 2005 and 2008 I took cytostatic treatment: cyclophosphamide, methotrexate and UFT (tegafur – uracil), under the form of pills.
I took MRI every year to determine the evolution of the giant pelvic chondrosarcoma. Between 2005 and May 2007 the tumor had a stationary aspect.
On December 12th 2008 I took a new MRI from which it resulted that since May 2007 the chondrosarcoma has grown, its maximum vertical diameter increasing by 3 cm, and the anteroposterior diameter increased by 2 cm.
The Romanian surgeons assert that the tumor is not operable.
The Romanian oncologists assert that there is no oncological treatment for chondrosarcoma.
At present I feel pain in the tumor’s area and in foot joints and I present difficulties with walking. For sustenance I benefit of a pension for 1st degree handicap and I am taken care of by my parents and my sister.
I am looking for a solution in view of recovery or at least for the disease’s remission.
I annex here the MRIs performed between 2005 and 2008.
I can be contacted on the following e-mail address: alexandrugenoveva@hotmail.com.